Luna (Aquilla) Elfindale
Luna (Aquilla) Elfindale
Kansas City, MO
As my journey with Ehlers Danlos Syndrome continues, I find more and more I am unable to do. I find it harder to hold my DSLR, even balancing my cellphone to take a photo when having to walk with my cane to snap a photo can be challenging but I can still do both and will still do both because what pain distracts me from remembering my photos will always keep for me.
Ehlers Danlos is very tricky I have good days and bad months. It’s so hard for me to make commitments or finish projects but being blessed with the opportunity to take part in Expressions last year I learned how much more motivated I was to continue to take photos, paint more and give myself more kindness on my bad days. I tend to get very down on myself for not contributing more to society, but this gave me a real sense that I wasn’t just a waste of space I had art here in town and that space was making people happier.
